Epilepsy at Work: To Tell or Not to Tell?

How to tell a co-worker you have epilepsy

Epilepsy at Work: To Tell or Not to Tell?

By Dr GaryCA Published at April 10 Views 2,833

Should I talk to coworkers about my epilepsy? And if I do, how much is enough? And at what point does enough become too much?

Disclosing any chronic condition to a coworker could just be something you casually mention over lunch. It can also be a whole lot more complicated, requiring you to consider not only what to say and how to say it, but whether you should disclose your chronic condition at all.

If you’re considering having this conversation with a coworker, here are some ideas to consider:

First, be clear with yourself on why you are disclosing. Start by asking yourself a question: What am I hoping to gain? If it’s possible that you may experience seizures that result in difficulty performing your job, or if you could need emergency assistance, then it may be advisable for you to disclose your condition to one or more people that you work closely with. If you have a close relationship with a coworker, and are sharing your personal lives with each other, then it may feel appropriate to let them know about your illness. But keep in mind that the workplace may not be the best place for you to get emotional support.

Decide when the time is right. Pulling a coworker aside during the workday to have a lengthy conversation may be frowned upon by management, and coworkers may be uncomfortable in this situation. So gauge when you think the best time is, maybe over lunch or after work.

Take a “need to know” approach. Decide ahead of time what you want to tell your coworker about your epilepsy. This will help you to keep your explanation brief and to the point. Keep in mind that too much information can lead to misperceptions that may affect your relationship. In other words, no need to over-share here.

Be clear about your intentions. This can be as simple as: “I wanted to tell you something about myself, if you don’t mind. The reason I want to tell you is _____.”

Be sensitive to how the other person is reacting. If you sense they are uncomfortable with this conversation – and looking for an exit – that’s a sign they may not want to go any further. Respond with: “It looks like you aren’t comfortable talking about this.” And then wait for a cue before continuing.

Offer to answer questions. Even the questions your co-worker may be afraid to ask. “Thanks for listening. Do you have any questions you want to ask?” Keep in mind that you don’t have to answer any questions you aren’t comfortable with, or that you don’t think are relevant. It’s as simple as saying, “I’m not ready to talk about that,” or, “I am not sure how to answer.”

Consider “putting it in writing.” If there is something you need a coworker to know, such as what to do if you need help and aren’t able to ask for it, then you might want to consider providing them with written guidance on what to do in the event of a seizure. Your physician may have a pamphlet you could give them, or you might find this on the Internet.

Keep your expectations reasonable. Some coworkers may be more ready than others to talk about your epilepsy. You might be surprised, for better or worse. But don’t be disappointed if a coworker you feel close to isn’t able to have this conversation with you. Again, you may want to seek emotional support from your family members and friends outside of work.

Keep in mind: If the topic is emergency preparedness, it’s advisable to have your boss or your Human Resources office involved. Know the guidelines, know your rights.

To learn more about living with epilepsy:

Could an Epilepsy Diet Help You?
Chronic Communication at Home: Helping Kids Answer the "What's Wrong with Your Mom/Dad" Question
What We Learn from Living with a Medical Diagnosis

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