Epilepsy Discussions

Ariskakes Very Frusterated with EEGs....... My daughter is going in for a three day stay for a VEEG and they are hoping to catch a…
By Ariskakes Latest Activity January 6, 2012 at 5:50 pm Replies 4 Likes 1
jaybird123 Was it a Seizure? Having uncontroled seizures are stressful. I have grandmal and complex partial seizures. The aura comes on when the complex partial…
By jaybird123 Latest Activity October 1, 2011 at 1:33 pm Replies 5 Likes 1
val_u Complex Partial Seizures vs. Night Seizures I'm trying to see if what happens to me happens to anyone else. Finally, I've been told an EEG shows…
By val_u Latest Activity April 23, 2015 at 10:31 pm Replies 1 Likes 1
MissPuff Odd symptom - possible seizure? I have 7 types of seizures - CPS, SPS (motor, autonomic, sensory & psych), Tonic & Myoclonic. I had grand…
By MissPuff Latest Activity March 24, 2011 at 10:55 am Replies 5 Likes 1
Jeanette Terry Epilepsy camps Has your child that has epilepsy ever gone to epilepsy camp? what are the pros/cons? Tell us about their experience. Here…
By Jeanette Terry Latest Activity March 23, 2011 at 11:05 am Replies 1 Likes 1
thegizzard topamax My neurologist is considering topamax on top of trileptal to control my simple complex seizures. I already take multiple drugs…
By thegizzard Latest Activity December 22, 2010 at 8:30 pm Likes 1
MissPuff Finally got appt w/epileptologist Well, it took almost 3 weeks, but I finally got an appointment scheduled to see the epi in February. It…
By MissPuff Latest Activity March 17, 2011 at 2:11 pm Replies 6 Likes 1
riverkings Seizure dogs I've seen a few articles lately about seizure service dogs. It sure would be nice to have something like that…
By riverkings Latest Activity August 12, 2011 at 8:34 pm Replies 2 Likes 1
riverkings Topamax I am not sure if anyone in this community is on Topamax but I found an article about a recall.
By riverkings Latest Activity April 22, 2011 at 4:29 pm Replies 1 Likes 1
Jeanette Terry How did you find this site? We all come from different backgrounds and have different needs when it comes to living with or helping a loved…
By Jeanette Terry Latest Activity April 27, 2015 at 6:33 pm Replies 1 Likes 1
riverkings insomnia We have been dealing a lot with insomnia lately. My daughter has went as long as 80 hours with no…
By riverkings Latest Activity November 18, 2014 at 5:48 pm Replies 1 Likes 1
riverkings Seizures and autism I found a couple interesting articles about the link between seizures and autism. I never knew there was a link.
By riverkings Latest Activity May 7, 2011 at 11:21 am Likes 1
thegizzard diagnosing epilepsy: why do some EEG's show normal and others not? I am frustrated. Some of my EEG's show normal, while others have epileptiforms on them. Which should I accept for…
By thegizzard Latest Activity April 23, 2015 at 10:47 pm Replies 6 Likes 1
flajwo Is the total "terror" common while coming out of a Grand Mal seizure ? The seizure doesnt scare/worry me as much as the feeling of absolute terror as I wake back up after the…
By flajwo Latest Activity July 14, 2011 at 11:06 am Replies 6 Likes 1
jaybird123 New Seizure Medication I was reading in my epilepsy magazine and came up on add of a new medicine sabril (vigabatrin). Has anyone…
By jaybird123 Latest Activity July 20, 2011 at 3:52 pm Replies 2 Likes 1