Epilepsy & Facebook add from your site

By Fiona1 Latest Activity October 29, 2013 at 1:47 am Views 1,422 Replies 3 Likes 1

Fiona1

I was on facebook awhile ago and I saw your add advertising your site. I am offended by the add that came up. The link says bi-polor connect and control it but n the title it says Epilepsy. Epilepsy is a neurological disorder and Bi-Polor disorder is a Mental illness. Putting a add up for your site with the words Epilepsy in the title, but a link to a bipolor site comes up and also shows as the link the title is referring too. It is misleading. Some people will think Epilepsy & Bi-Polor disorder are one in the same or they are related but they are not. I don't know who put up the add but I am offended. Now when I talk to my friends on facebook who don't know about Epilepsy, they are going to tell me that they saw an add for Epilepsy but the link says bi-polor. Here is the link that was under your title that said, How to manage your Epilepsy. I am going to paste the link.
https://surveys.bipolardisorderconnect.com/ep...

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Replies (3 replies)

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  • Dee14
    Dee14 May 30, 2014 at 4:38 am   
    Edited May 30, 2014 at 4:42 am by Dee14

    They URL may have bipolar disorder connect because perhaps that was the first discussion post and it became broadened to include other disorders. Anyway, the link ends up going to the correct Epilepsy Connect site, and people don't judge a website on the URL address.
    It's one thing to be a little confused. And I understand you are frustrated with the ignorance of people (including your friends according to you) who don't know basic information about epilepsy. There is a lot of misinformation out there. I don't think that the URL and website issue would cause most people to become confused or thing they are the same issue.
    Please refrain from using the word "offended" because that implies that there is a huge stigma or shame about bipolar or mental conditions in general…and that you would feel ashamed or stigmatized more for having bi-polar than for having epilepsy. Frankly the line between psychiatric and neurological conditions was blurred long ago…and frankly most of the medications used for epilepsy are also used for bi-polar (and vice versa), and they have found lots of connections (and possible causations) between the two conditions. There has been a lot of research finding that bipolar has a strong genetic component and strong biological causes. This explains why many people have both.

    Anyways, I can understand you may find the URL issue confusing, and perhaps be frustrated and want to request it be checked and corrected if necessary. But "frustrated" from misinformation is different than "offended". The medical and psych communities are trying to undue the stigmas associated with psychological and psychiatric issues, and using 'offended' doesn't help. There are so many bad stigmas associated with conditions like bipolar and epilepsy…so let's all together fight all these stigmas by supporting each other.

  • clarkdiane
    clarkdiane November 13, 2013 at 7:17 am   

    No need to be offended , its a survey site , does not even relate to Epilepsy, so no need to worry , please don't worry